Welcome to the Hydrocephalus Support Association
#DoitforDarcy Campaign for the Hydrocephalus Registry
We are attempting to convince the Federal Government to fund the Hydrocephalus Registry.
What we need is $200,000 per year to run the registry
We need your help in the following ways
1. Share these articles on Social Media with the hashtag #DoitforDarcy
2. Write to or visit your local Federal Member of Parliament about the registry.
Hydrocephalus Support Association
We are a group of people who have hydrocephalus together with their friends and families. We also have the support of a number of specialists and our patrons are neurosurgeons, Professor Robert Jones and Associate Professor Brian Owler. The Association was formed in 1997 and Incorporation took place late in the year 2000.
What are the Aims of the HSA?
- 1. To provide support for all persons suffering from Hydrocephalus and associated illnesses.
- 2. To provide the same support for families, partners and other interested persons associated with sufferers of Hydrocephalus and associated illnesses.
- 3. To share information related to or about hydrocephalus and associated conditions and illnesses.
- 4. To provide forums, news or information networks to discuss the various aspects, treatment or conditions of hydrocephalus and associated illnesses.
- 5. To promote an "awareness of Hydrocephalus" where and when appropriate.
- 6. To aid any research related to Hydrocephalus and associated conditions and illnesses where possible and or practical.
- 7. To do any or all such other things as are conducive or incidental to the attainment of the above aims.
The dream of the Hydrocephalus Support Association. With thanks to the Hydrocephalus Association of the USA.
How are these aims furthered?
- 1. The holding of meetings, lectures, conferences and social gatherings.
- 2. The publishing and distribution of literature in particular a quarterly newsletter.
- 3. The formation of a Buddy Scheme where members can link up with each other by age, condition or location.
- 4. The provision of resource materials such as articles of interest and videos of conferences. A resource guide is provided to all members
- 5. Any other activity as considered by the committee and members as appropriate
Who can join?
Membership is open to any person with the condition of Hydrocephalus or an associated condition as accepted by the committee. Members will also include the family of persons suffering from Hydrocephalus or related conditions.
Membership is also open to professionals and other interested persons.