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Welcome to the Hydrocephalus Support Association

Hydrocephalus Support Association

The Hydrocephalus Support Association (HSA) is a not-for profit organisation whose core mission is to support people with hydrocephalus and their families to overcome disadvantage, strengthen their abilities and successfully live independently. The philosophy of the organisation is underpinned by peer support and advocacy, and the association is run by volunteer members for the benefit members.

The HSA undertakes a number of activities to achieve the core mission of the organisation, including:

  • Quarterly meetings and newsletters to bring people with hydrocephalus and their families together.
  • Awareness raising and dissemination of information, research and treatment of hydrocephalus
  • A national conference held by the HSA every three years.
  • Advocacy for individuals with hydrocephalus to support independent living.
  • Volunteer welfare officers to support members.
  • A members’ only Facebook group to facilitate sharing of information about and experiences living with hydrocephalus.
  • Dedicated fundraising and grant application programs to raise funds to:
    • enable the HSA to continue to support members and their families;
    • fund research into the causes, treatments and long-term outcomes for people living with hydrocephalus.
    • These programs include fundraising events and applications to philanthropic, not-for-profit, private and government organisations for funding.

Our patron is Professor Brian Owler. The Association was formed in 1997 and Incorporation took place late in the year 2000.

Who can join?

Membership is open to any person with the condition of Hydrocephalus or an associated condition as accepted by the committee. Members will also include the family of persons suffering from Hydrocephalus or related conditions.

Membership is also open to professionals and other interested persons.

Click here for details

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